Comparison is the thief of joy

Hello friends.

It’s been 211 days since publishing my last blog post. I’m 30 years old now, as of July 11th. THIRTY!

Everything in my life is a-OK overall. I played in two softball games for 3 hours last Friday night and put my lungs to the test as I sprinted to first base for a ground ball hit and then flew around second base and made it to third on a teammate’s single. I hadn’t sprinted like that, full of adrenaline, in years. It felt oh-so-good to have a burning sensation in my lungs and to really open them up. Speaking of opening up, this blog post is going to be raw and vulnerable and somewhat stream-of-consciousness. Blogging is cathartic for me and I have some observations that have been marinating in my head that need to get out worse than President Biden needs to get out of office.

My life right now, all things considered, is great. I am relatively healthy, I see my siblings (who love me very much) on a daily basis, I have two amazing, rock-solid parents, I have friends that pray for me often, I really like the work that I do, I am eating a very healthy, low-carbohydrate diet, I am lifting weights 4-5 times per week, and I went to confession recently so my conscience feels healthy, too. Things, in general, are moving in the right direction. I try my best to remain grateful. Try is the key word there.

I’ve been battling lately with resentment. My dad has told me many times that his dad used to say to him, “Tommy, don’t judge a man until you have walked a mile in his moccasins.” Easy to say, extremely hard to do. I know my dad took it to heart, because he is one of the most understanding, non-judgmental people that I know.

With our highlight-filled social media feeds, in which most of the content that people put out there is a façade and not at all reflective of their inner lives, it’s easy to be filled with jealousy. I find that when I am quick to judge others, in person or on social media, my cynical and bitter side wins the day on some days, or weeks. I look around and start assuming things about people, as if their life stories aren’t just as complex and beautifully messy as mine.

Did the typical red-blooded American 30 year old have to have, through no fault of his own, a bilateral lung transplant when he was 22? No. Is the typical 30 year old taking 17 different prescribed medications every day and dependent on them for staying alive? Does he constantly deal with symptoms of cystic fibrosis, diabetes, gastroparesis, and immuno-suppression? Is he in constant fear of rejecting a part of his body? My cynical side thinks hell no, of course not, that is not normal; it is extra-ordinary. In order to maintain a healthy dose of self-respect, my competitive side comes out, the side of me that carries that biiiig chip on my shoulder, and I start to belittle other people’s problems. I am living life on HARD mode while these chumps are living it on EASY, I think to myself. Everything is harder for me. Everything from dating to gaining muscle to earning a living. I fight with myself a lot over this dastardly sin of envy, as we all do, and get frustrated when people take all of the amazing goods in their lives for granted. Health, financial stability, a partner. Great parents, a nice car, an incredible education in their formative years. Hell, even just living in one of the greatest first-world countries in the world, the USA. Good things that make life “easy.”

In my opinion, gratitude is in short supply these days. It requires us to slow down and smell the roses, but our lives are too fast-paced for that. Social media has us always wanting more, more, more, and I think it has turned us into a shallow and narcissistic society, and I include myself in that. We don’t truly appreciate things while we have them. (I am reminded of the very last scene in Season 1 of The Sopranos when Tony raises a toast and says, “I’d like to propose a toast. To my family. Someday soon, you’re going to have families of your own. And if you’re lucky, you’ll remember the little moments, like this. That were good. Cheers.”)

COMPARISON IS THE THIEF OF JOY it says, above the dumbbells, in big bold letters, at the gym that I go to.

Truer words have never been written. It’s one thing however, to memorize a platitude, and quite another to put it into action. In the new movie Father Stu with Mark Wahlberg, Stuart (Father Stu) is told at one point, “Life is going to give you a gutful of reasons to be angry kid, you only need one to be grateful.” Gratitude is the single candle that shines in the darkness and that will never be overcome by it. It is truly a superpower. I might even get that tattooed on my body. Gratitude is a superpower. Success is relative, and compared to others who have cystic fibrosis and are in dire need of a transplant, my path to this point in my life from that one has been relatively smooth. Successful. Triumphant, even.

God writes straight with crooked lines, as the saying goes. He is weaving a beautiful tapestry out of our lives, and who are we to question his handiwork.

Please pray for me!

Hello readers,

It has been a while. One of my mom’s friends posted on facebook and asked me to write again (and gave me a nice compliment, saying that I am a good writer.)

This holiday season has been, overall, very good. I did have a setback with my Honda getting totaled by a reckless teenager at 2 in the morning, but I am very happy with my new Acura that I bought to replace it.

I had a medication change about 2 months ago that is giving me all sorts of new energy, especially mentally. I started taking more Lantus, my basal insulin. I feel like Prince Rilian after the green fog lifted in the dungeon and he destroyed the silver chair and the spell that Jadis had over him. The brain fog I have experienced most of my life seems to be gone. I finally have my blood sugars under control. My “3.6 GPA in middle school” brain is back, baby.

Chronically high blood sugars are no bueno, man. My body has like 15 different “this needs to be fixed” lights on at once, but this one was really important that I get it fixed.

Okay so I am going to be blunt and get right down to brass tax here. I am having a hard time adjusting to this new energy. My whole life it seems like revolves around medications and their side effects. Since my mind is clear (I can think cleeeeeearly now, the fog is goneeeeee), I am having outbursts of anger and I seem to be more prideful and conceited, if that makes sense. I have a way shorter fuse. Less tolerance for bull-jive, if you catch my drift.

In a sense, my car situation over the last month is apropos here. My old brain with higher blood sugars causing lethargy and brain fog was a 2010 Honda Accord EX with cloth seats and limited tech. My new, clearer, better functioning brain is a 2011 Acura MDX with AWD, a V6 engine, leather seats, and the *ahem* technology package.

To be honest, I am struggling in my faith right now because I have become more self-reliant and quite frankly my ego is getting out of control. I snap back at people over the smallest slight or criticism. I don’t handle it with grace and patience when things do not go my way.

My spiritual life is arid and dry. I am cynical a lot. God and I aren’t seeing eye-to-eye.

If you all could say a prayer for my mental health and an increase in faith, hope, and love, I would appreciate it BIG TIME.

I will do my best to offer this suffering up to God.

I love all of my readers! Have a great Christmas season and New Year’s.

29 Things I Am Grateful For

  1. BEING ALIVE AT 29 – It is honestly a miracle that I am even alive. In May 2015, the doctors told me that I had 6 months until I was in total respiratory failure and on ECMO. But God had a plan for my life, and that included me writing this blog post 6 years later, in good health! Thank you God!
  2. MY PARENTS – They are two saintly examples of selfless love and sacrifice, and I am lucky to be their son!
  3. MY SIBLINGS – Carolina, Mary, Anna, John, David, and Barbara. I have a unique bond with all 6 of ’em, and each one is a blessing. They have been there through thick and thin and have taught me some invaluable lessons. They’re some pretty cool cats.
  4. MY NIECES AND NEPHEWS – I have had the privilege of watching Eleanor and Christiana grow up before my very eyes since they still live in Dallas with my sisters. I am going to see Maris and Will, my brother’s children, in Las Vegas this weekend!
  5. EXTENDED FAMILY – Cousins, aunts, uncles, and second cousins (many of whom are nurses). Their love and support has been invaluable through the years. My cousin Joe “Yogie Bird” is basically a brother to me. Love y’all!
  6. PRAYER WARRIORS – Countless friends that know me or my family that have prayed and prayed and prayed for my health – you are amazing! I truly have an army of people that storm heaven with prayer on my behalf. You know who you are. 🙂
  7. MY FRIENDS – All of my close friends. Y’all are the best and I have needed every single one of you at some point.
  8. MY DONOR – Without his act of noble sacrifice, I would not be breathing today. I pray that his family be at peace and that he is resting peacefully in heaven. He has certainly given me a deeper appreciation of the Eucharistic prayer, “This is my Body, given for you.”
  9. DOCTORS & NURSES – To all of the doctors, nurses, techs, physician assistants, and medical staff who helped me get here, thank you. Your excellent care and your expertise are literally saving lives like mine every single day. Big shout out to Dr. Michael Wait, the main surgeon for my transplant. That man has hands that are touched by God!
  10. MODERN MEDICINE – The fact that I live in a time when double lung transplants are even possible is something to be grateful for. All of my medications that keep me from rejecting are a product of decades of research, clinical trials, and innovative thinking.
  11. CYSTIC FIBROSIS WARRIORS – I am in awe of the obstacles overcome by my internet friends who have cystic fibrosis (I know multiple people who have had 3 double lung transplants.) Though I have never met most of you in person, the example and inspiration that you provided, especially in my “sick” years, kept me going and showed me what the human spirit is capable of.
  12. THE CHURCH – Baptism, Confession, Anointing of the Sick, and the Eucharist. Need I say more?
  13. SAINT THERESE OF LISIEUX – My heavenly sister. Back in 2014 she interceded for me and helped me make sense of my senseless suffering. She helped me realize that “suffering is the very best gift [God] has to give us. He gives it only to His chosen friends.” She has stayed close throughout the years, interceding for me many times since.
  14. MY GUARDIAN ANGEL – This angel was assigned to me at conception and boy, does he have to work over time to keep me alive and out of trouble!
  15. MY GODPARENTS – Vic and Cynthia Savelli have supported me since I was young and I am where I am in large part due to their prayers and support!
  16. My GODDAUGHTER – Marion Jean, I’m praying for you to grow up into a saintly young woman who loves God with her whole heart, mind, and soul!
  17. CISTERCIAN PREPARATORY – I went to an amazing high school called Cistercian Preparatory School, and have so many friendships and mentorships from my time there. Our class was a brotherhood of 45 or so extraordinary dudes that grew up together and have seen a whole lot of life together. And don’t get me started on how amazing the teachers and staff are. The monks who live at the Cistercian Abbey brought me the Eucharist every day for 2 months leading up to and after my lung transplant. I lean on them heavily for spiritual guidance and life advice, and I am in awe at their holiness.
  18. UNIVERSITY OF DALLAS – Though I have yet to finish my degree, in my 3 years at UD I learned so much history, philosophy, literature, theology, and much much more. It was pretty tough keeping up with school work while managing my declining health from 2011 to 2014, but I know if I wanted to return, they would welcome me back with open arms.
  19. SAINT ELIZABETH ANN SETON YOUNG ADULTS – I’ve been attending this particular young adult group since 2013, and made many friends along the way. We mainly do Lectio Divina, Rosaries, and Adoration together.
  20. AMERICA / TEXAS – Grateful to live in this great nation and in the greatest state in that nation. 🙂
  21. MOUNT WHEELER – I have been lucky enough to climb to the highest point in New Mexico 5 times, all since my transplant, and it is just as majestic the 5th time as it is the 1st. It is 13,161 ft in elevation!
  22. BOY SCOUTS – I am an Eagle Scout and have great memories of camping trips, hiking trips, service projects, merit badges, summer camps, and many more adventures during my time with the Boy Scouts.
  23. MY HOUSE – 2 big yards, 4 bedroom and 2 bathroom. We had to install brand new floors, ceiling, cabinets, appliances, countertops, and light fixtures due to having a pipe burst in the February winter storm. It’s like a whole new house. Only a 10 minute walk from amazing downtown Grapevine!
  24. MY CAR – Trusty 2010 Honda Accord that runs well. Vroom vroom.
  25. MUSIC – “Music is the universal language of mankind.” – Henry Wadsworth Longfellow
  26. COMEDY / COMEDIANS – Bo Burnham, Mark Normand, Bill Burr, Nate Bargatze, I could go on….
  27. SPORTS – Mavericks, Rangers, Cowboys and Stars have all provided some incredible moments throughout my life.
  28. MY PC / THE INTERNET / MY iPHONE – I built my own PC from scratch and it is an absolute beast. Also, who couldn’t live without their phone nowadays?
  29. GREAT MOVIES – From classics like It’s A Wonderful Life, The Lord of the Rings, and The Shawshank Redemption to my personal favorites like The Phantom of the Opera and Braveheart, I believe a great movie can change your life!

“Prayer is an aspiration of the heart.  It is a simple glance directed to Heaven.  It is a cry of gratitude and love in the midst of trial as well as joy.” –St. Therese of Lisieux

The Rosary and The Jesus Prayer

Howdy howdy blog readers. It’s been a long while. I hope things are going well in all of your lives, given the circumstances in the world right now. I’ve been meaning to write again for many reasons, the first being to ask for prayers of healing for my older brother David. Right before Christmas, it was discovered through an endoscopy that he has a malignant tumor in his esophagus. A few days ago we found out that the cancer has spread to his liver. He is 32 years old, far too young to have to deal with this, and on top of this he has cystic fibrosis just like me, and that’s a whole other set of health issues. We love him very much and would obviously like to see this cancer go away. He has a tremendous support network of 6 siblings, our parents, and countless friends to make this fight a little easier, thank God, but it will be a hard fight nonetheless. We are praying to the Blessed Virgin Mary, St. Padre Pio, St. Peregrine (patron saint of cancer patients), St. Therese of Lisieux, and many other saints to intercede for him and ask God for total healing, but if not total healing then that His will be done. David starts chemotherapy tomorrow and I’ll be there for the start of his first infusion. Any and all prayers are welcomed!

Another reason I needed to write was to emphasize praying the Rosary. It is amazing what it does for the soul. Praying it sincerely every day will change your life. It is “the most beautiful and the most rich in graces of all prayers” according to Pope Saint Pius X. Our Lady almost always asks us to faithfully pray it in her apparitions (such as Fatima and Lourdes) for a reason. Among other things, Our Lady promised Blessed Alan de la Roche that those who faithfully recite the Rosary “shall not perish” and “it will cause good works to flourish; it will obtain for souls the abundant mercy of God; it will withdraw the hearts of men from the love of the world and its vanities, and will lift them to the desire for eternal things.” We should all be praying the Rosary on a daily basis—it only takes 15 minutes for crying out loud!

A third thing I wanted to write about is a prayer that I just recently discovered and that I say a lot now, which is the Jesus Prayer:

“Lord Jesus Christ, Son of God, have mercy on me, a sinner.”

It is so simple, yet powerful. Similar to the St. Michael Prayer, it is great to pray when we are facing temptations to sin. It can be repeated over and over until we are centered again on God and are “delivered from evil” by his mercy.

In conclusion, I will include a link to a YouTube video called “Fr. Don Calloway, MIC: The Rosary: Spiritual Sword of Our Lady” which is one of the best talks on the Rosary I have ever heard.

Thank You Kobe

Hey everyone,

This is my first blog post in a long while. I recently got a text from a friend about how much they enjoyed my writing from years ago and it’s spurred me to write even though I am extremely rusty.

I have to start with the depressing news today of Kobe Bryant and his 13-year-old daughter Gianna dying in a tragic helicopter crash. It honestly has me shaken up and stunned. This is one of the saddest days of sports news in my lifetime. It feels as if a close friend and mentor has passed even though I never knew him personally. It is such a traumatic and devastating event for his family and will send shock waves through the NBA for years to come. Kobe is an absolute legend and not just for things like making 2 free-throws after rupturing his Achilles or his 5 NBA championships or his career as Michael Jordan 2.0 or his Oscar for Dear Basketball. Kobe’s ultimate legacy will be his Mamba Mentality.

What is the Mamba Mentality? When adversity comes, as Kobe said: “We don’t quit, we don’t cower, we don’t run. We endure and conquer. Stop feeling sorry for yourself, find the silver lining and get to work with the same belief, same drive and same conviction as ever…”

Kobe had an almost psychopathic drive to win and succeed in everything that he did and he understood from day one of his NBA career that this mentality is what it took to achieve true greatness. Through his life he has inspired millions to be better versions of themselves and to persevere through trauma and tragedy with their head held high.

He had this to say when talking about how to face a major surgery and rehab:

“Reality gives nothing back and nor should you. Time to move on and focus on doing everything in your power to prepare for surgery, ask all the questions to be sure you understand fully the procedure so that you may visualize it in your subconscious while being operated on and better the chance of it’s success. Then focus on the recovery process day by day by day. It’s a long journey but if you focus on the mini milestones along the way you will find beauty in the struggle of doing simple things that prior to this injury were taken for granted. This will also mean that when you return you will have a new perspective. You will be so appreciative of being able to stand, walk, run that you will train harder than you ever have. You see the belief within you grow with each mini milestone and you will come back a better player for it.”

Those are the words of someone who gets it. I know a thing or two about facing major surgeries that are going to take months to recover from and Kobe is absolutely right that gratitude is the answer to coming back from trauma. You have to look ahead and relish the new perspective that you will have. When you are bogged down in the grind of rehabbing and healing from something, your only focus should be on crushing those small, achievable goals that are presented to you. Block out the doubt that you will never be the same again. With each goal checked off, you can look back and see how far you have come. Having the humility to be thankful for every little thing that we have is honestly the hardest mindset to master but it is essential to being happy in the present and is honestly like a cheat code in life. A truly grateful person will be accepting of past failures or wounds because they see everything as a gift that led them to where they are now and they will also see tomorrow as another opportunity to get better and heal some more.

I’m not perfect when it comes to this, and it took me years after my transplant to shed the victim mentality of a “chronically ill” person. Being a person with cystic fibrosis used to be pretty much my whole identity. I went into a lot of things expecting to fail. I said “I can’t” way too often. But when I take a step back and look at how different my life is from pre-transplant to now, I am blown away. There were so many little milestones that changed my life and moved me forward a tiny bit at a time.

When I could finally take a really deep breath without coughing, that was an amazing milestone. When I could burst out into a full run and my legs got tired before my lungs did, when I had no rejection whatsoever after 1 year, and when I started paying for my own health insurance, all incredible milestones. When I had the energy and confidence to apply to work at The Container Store, that was huge. I have the life that I have now because I didn’t quit. And that’s what the Mamba Mentality is all about.

At this moment in time, let’s say thank you for the life of Kobe Bryant. What an incredible life and story this guy had. The greatest way to honor Kobe Bryant’s legacy would be to adopt the Mamba Mentality in pursuit of our goals and dreams for 2020. My goal for 2020 is to get as muscular and shredded as possible and have that magazine-worthy body. It won’t be a cake walk. It will take at least 6 months of consistency to see good results. But I’m up for it.

“When you make a choice and say, ‘Come hell or high water, I am going to be this,’ then you should not be surprised when you are that. It should not be something that is intoxicating or out of character because you have seen this moment for so long that … when that moment comes, of course it is here because it has been here the whole time, because it has been [in your mind] the whole time.” -Kobe Bryant

RIP Kobe Bryant, a.k.a. The Black Mamba.

Attitude of gratitude

First off, thank you for clicking on my blog post and reading this. It means a lot!

I wanna talk about gratitude. Working in customer service, I encounter a lot of ungrateful and entitled people. They rant and scream about a $10 additional shipping charge on a $700 custom closet order, and usually are more rude than in person because they are behind a phone.

free shipping

 

I want to remind so many to pause and be thankful that they can even afford a $700 custom closet. I have wanted to say, “I get that you’re frustrated but this is the epitome of a first world problem, deal with it” so many times and just hang up. But nah, that would get me fired. Gratitude is my favorite exercise to practice because you can’t have a bad day if you are grateful for everything. It’s impossible. It’s so easy to practice yet so so difficult to consistently do and truly mean it. You can simply look down at your hands and feet and think, thank you God for the ability to walk and run and work with my hands, play tennis, go wherever I want to whenever I want to. Thank you for the ability to see, to take deep breaths. Thank you for the cold, windy, rainy weather—it makes me appreciate the sunshine. Thank you for a mother and father, a family that loves me, a friend that has been there through thick and thin. Even those with disabilities or chronic illness can say thank you, even though that sounds harsh. They can thank God for the opportunity to be an inspiration and for making them a tougher, more resilient person.

Gratitude will reset your attitude for the day, and put things in perspective. Two of the best Christmas movies ever—It’s a Wonderful Life and A Christmas Carol—both center around men who grow entitled and start assuming that the world owes them something, only to be stripped of everything and humbled. It’s only after they had nothing that they realized that their lives they had were pretty freakin’ awesome.

its-a-wonderful-life1

When we realize that we could have nothing, and really imagine having absolutely nothing, it will make even the smallest things we have gigantic blessings.

I’m not saying that I never complain, but I’m moving towards being grateful for everything in my life. Gratitude takes humility, self-awareness, thoughtfulness, and will definitely make you more WOKE… 2019 will be a hell of a year if people say thank you more and complain less. Thanks for reading!

NEVER GIVE UP HOPE!

It was Spring 2015. Barack Obama was President, the Golden State Warriors had not won their first championship in the Steph-Klay-Draymond era, and Cecil the lion was still roaming the plains of Africa. In my own life, well, it was looking like Cecil and I were going to meet the same fate of a cruel death. Cystic fibrosis was beating the shit out of my body and had a choke-hold on my future. It sorta looked like this.

Noland Ryan and Robin Ventura

As hard as I tried to fight, I was only getting closer to total respiratory failure by the day. The head lung transplant doctor at UT Southwestern, not known for his gentle bedside manner, said that my lungs were a “ticking time bomb” and I probably had around 3 months until veeery bad things would happen. I weighed 105 lbs, was being kept alive by expensive machines and medications (though the medication part hasn’t changed, ha!) and was on 3L of oxygen constantly and basically bed-ridden at 22 years old. What I was coughing up from my lungs every hour of every day rivaled that disgusting part in the bedroom scene at the end of The Exorcist when….well, you get it. All of this was nothing compared to what say a Syrian refugee has gone through but damn, it was a lot compared to the 22 year olds around me at the time.

I write this to give context to what I am about to say. One thing never changed throughout this crazy period of spring and summer 2015. My health went through extreme ups and downs, and yes, I did have internal, quiet moments of deep depression and anxiety, but I never completely despaired. “Never despaired” seems like a low bar to clear, but believe me, extreme illness and despair go hand-in-hand. It is so frustrating to take 1 step forward and 2 steps back everyday if you do not have a reason WHY you soldier on. My why was simple: “I will not give up. My family and friends will not allow it.” When internal motivation runs short, it is so critical to keep a sliver of hope alive. I never once thought, “all of my effort is not worth it for a better, healthier future.” I take about 10% of the credit for this and give 90% to friends and family.

The constant in my life (as reliable as Luka Dončić in the clutch or Kevin Durant being petty) was hope and confidence in God’s plan for my life by people who loved and cared for me, despite what I may have been feeling that day. The unfailing optimism, especially from my mom, rubbed off on me, and I decided most days that I was going to be a willing warrior and shoulder the burden of CF voluntarily. What is the whole Christmas season about again? Oh, yeah, that’s right. An obscure Jewish teenager accepting a mysterious and overwhelming request from GOD HIMSELF to bear the Savior of the entire universe, and doing so joyfully and with hope.

Now that I’m healthy after my double lung transplant, I work 30 hours a week at The Container Store as a Customer Contact Coordinator (i.e. customer service) and continue to be a caregiver for my sister Anna. I can say I honestly look forward to going in to work at TCS, and I hope to stay there a while.

I can complete intense 1 hour long Camp Gladiator sessions as well as the next guy.  I’m eyeing the World Transplant Games (tennis/track) in Newcastle Gateshead, UK next August. No hospitalizations for a year and a half.

The life I get to live now at the end of 2018 is beyond my wildest dreams. Lung function in the 90-95% range. Working 40 hours a week. Getting to see this cutie grow up.

ellie

I stand as a champion over cystic fibrosis, THANK GOD. Basically every day I feel like I’m Steph Curry doing the shimmy after I hit a game-winning three from 30 feet. After all, I am a warrior in a golden state of life right now. Get it, get it? Thank you everyone for helping me keep hope alive!! I believe in hope and leaning into your suffering, boxing it out with hope, being patient with God’s plan, and rebounding from the bad times with joy for the fact that YOU ARE ALIVE. Y’all have a merry Christmas!

HOPE

9 month update

It’s been waaaay too long since I have blogged! An update is long overdue. First off, I want to say that I’m doing fantastic health-wise. I’m constantly eating, so I’ve gained some weight and I’m currently up to 145 lbs. I’ve grown fat and happy, as my Dad likes to say. My lungs are as powerful as ever. The FEV1 on my spirometry tests still registers at 4.14 liters, meaning that I can exhale 4.14 liters of air in one second after taking the deepest breath possible and blowing out as hard as I can. A normal 23 year old with no health problems could exhale about 4.25 liters in one second, so I am roughly at 97.4% percentage-wise. I truly have an awesome pair of breathers. When I go on walks with my parents and my niece Christiana, its customary that I race Christiana home, starting at the end of our block. It’s about 100 meters, and I can all-out sprint the entire way with no problem. It’s so exhilarating to all-out sprint! The feeling of having air rush all the way up from the bottom of my lungs with no wheezing or obstruction is such a blessing.

Pretty much the opposite of Murphy’s Law (anything that can go wrong, will go wrong) has been the case during my transplant and the (almost) 9 months since. Everything has gone right. March 15th will be 9 months, and so I’ll have to celebrate my health somehow, maybe with another blog post with a video of me sprinting and running? I don’t know.

I have two part-time jobs, both pretty low-profile data entry jobs. One is at the Cistercian Abbey library, and the other is at the company that my brother and sister work at called Varidesk. They are perfect for my current schedule (I still have a lot of doctor’s appointments) and they have been a perfect way to ease back into normal life.

I am scheduled for a bronchoscopy (fairly routine procedure for post-transplant patients) on March 15th so they can check out my lungs and make sure everything is as expected. Please pray that it goes well! Thank you!

St. Therese strikes again

Roses

St. Thérèse is so awesome. Tonight, I got this text from a totally random number. After a few back and forth messages, I learned that Brenda (the lady who drew this) draws to give glory to God and to show that her Parkinson’s disease will never take away her God-given talent. She drew this free-hand and “accidentally” sent it to me. I think St. John Paul II (who had Parkinson’s) and St. Thérèse may be trying to tell me something…that heaven is always watching! It even has a ’65’ in the area code. 65 roses, anyone?!

I said this about St. Thérèse before transplant: “Lung transplants were not even remotely possible in her day, but I have full confidence that she will be with me every step of the way, urging me to never lose the ardent desire to become a saint which she herself had until the day she died.”

She is most certainly with me and will continue to be.

200 meters

Try to run 200 meters with a nose clip and breathing through a straw. At the end when you are dizzy and exhausted, you will know what it’s like to have 20-30% lung power! You are out of breath like they were in the video pretty much all of the time. Exercising or even just walking up three flights of stairs is basically torture. Not to mention having to cough up thick mucus and wheezing like an 80 year old life-long smoker.

Thank God I am in the 80-90% range now. No more coughing, no more vest, no more nebulizers, no more oxygen, no more CPAP, no more lung infections, and no more PICC lines!